For Veterans and Family - Parkinson’s Disease Research, Education and Clinical Centers
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Parkinson’s Disease Research, Education and Clinical Centers

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For Veterans and Family

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Appointments
Veterans with suspected movement disorders are typically referred to a PADRECC or a Consortium Center by a consult from their VA primary care provider or general neurologist. Please, see our Getting Care page for more information.

If you are a Veteran and are not yet in the Veteran Affairs Healthcare System, print out your VA Welcome Kit and explore Vets.gov to learn about your benefits.  https://www.vets.gov/welcome-to-va/

Parkinson's Disease and Military Exposures
Veterans diagnosed with Parkinson’s disease who served in-country or on the inland waterways of Vietnam between January 9, 1962 and May 7, 1975 are presumed exposed to Agent Orange or other herbicides and are eligible for presumptive service-connection. To learn more, about Agent Orange and other military exposures, click these links:

Agent Orange website or call 1-800-749-8387, the Special Health Issues Toll-Free Helpline.

Camp Lejeune past water contamination and Parkinson's disease

VA Military Exposures and Veterans' health concerns pages

WRIISC: War Related Illness & Injury Study Center, may have additional information

Support Groups

Nationwide via telephone

Parkinson's Telephone Education/Support Conference

Meetings: 2nd Tuesday each Month;  10-11am PT, 11am-12noon MT, 12-1pm CT, 1-2pm ET  download flyer

Location: call 1 (800) 767-1750 enter code 54321#


Philadelphia VA PADRECC

Meetings: 1st Monday of the Month
1:30pm-2:30pm April-December

Location: Philadelphia VAMC
3900 Woodland Ave
Philadelphia, PA 19104
PADRECC Conference Room
4th Floor Old Building

Contact: Gretchen Glenn
(215) 823-5934


San Franciso PADRECC (Support Group Page)

Meetings: Third Tuesday of Each Month
4:00 PM to 5:30 PM

Location: San Francisco VAHCS
4150 Clement Street
San Francisco, CA 94121
Building 7, 1st Floor, Auditorium

Contact: Susan Heath, RN, MSN
(415) 379-5530


Richmond PADRECC (Support Group Page)

Meetings: 4th Thursday, most months
1pm-3pm

Location: Hunter Holmes McGuire VAMC
1201 Broad Rock Boulevard
Richmond, VA 23249
Room 2K113

Contact: Debbie Dellinger or Miriam Hirsch
(804) 675-5931


Houston PADRECC

Meetings: 1st Thursday of each month
12:30-1:30pm

Location: by Telephone line
(800) 767-1750  Code 39135#

Contact: Sally J. Samuel, RN
(713) 794-8410


West Los Angeles PADRECC

Meetings: Please Call

Location: West Los Angeles VAMC
11301 Wilshire Blvd
Los Angeles, CA 90073

Contact: 
(310) 478-3711 x48001

Parkinson's Disease Organizations

Notice: When you click on a links provided below, you will be leaving the Department of Veterans Affairs Website. The VA does not endorse and is not responsible for the content of any of the links listed below. Please refer to the VA's official disclaimer at: http://www.va.gov/disclaim.htm


American Parkinson Disease Association (APDA)
www.apdaparkinson.org

Michael J. Fox Foundation for Parkinson's Research
www.michaeljfox.org

Parkinson's Foundation
www.parkinson.org

The Parkinson Alliance
www.parkinsonalliance.org

Davis Phinney Foundation
www.davisphinneyfoundation.org

Clinical Trials
www.clinicaltrials.gov

International Essential Tremors Foundation
www.essentialtremor.org

Lewy Body Dementia Association
www.lbda.org

CurePSP
www.psp.org

Man and woman talking with a doctor
Educational Resources

My Parkinson's Story 

My Parkinson's Story on YouTube is a series of short videos addressing various aspects of Parkinson's disease told through the grace of Veterans' stories:   
VA Parkinson's disease playlist on YouTube

  • Early Parkinson's Disease
  • Deep Brain Stimulation and Parkinson's Disease
  • The Impact of Depression in Parkinson's Disease
  • Thinking and Memory Problems with Parkinson's Disease
  • Impact of Falls and Parkinson's Disease
  • Sleep Problems and Parkinson' Disease
  • My Parkinson's Story: ADVANCED PARKINSON'S
  • My Parkinson's Story: DRIVING
  • My Parkinson's Story: EXERCISE
  • My Parkinson's Story: HOSPITALIZATION
  • My Parkinson's Story: IMPULSIVE BEHAVIOR
  • My Parkinson's Story: MEDICATIONS
  • My Parkinson's Story: The CAREGIVER
  • My Parkinson's Story: SPEECH and SWALLOWING
  • My Parkinson's Story: GENETICS
  • My Parkinson's Story: ENVIRONMENTAL EXPOSURE
  • My Parkinson's Story: ATYPICAL
  • My Parkinson's Story: DYSKINESIAS
  • My Parkinson's Story: PAIN
  • My Parkinson's Story: VISUAL DISTURBANCES
Notice: When you click on a links you will be leaving the Department of Veterans Affairs Website. The VA does not endorse and is not responsible for the content of any of the links. Please refer to the VA's official disclaimer at: http://www.va.gov/disclaim.htm

Newsletters:

The PADRECCs publish two newsletters to provide clinicians with information on recent developments concerning movement disorders. These newsletters are also available to our patients. Go to our For Professionals page and look for the VA Parkinson Report and the Bi-Monthly Transmitter on the right-hand side.


NEW! Updated Patient Education Brochures:

Patient Education Brochures were developed by the PADRECCs to provide patients and families with information on the most common topics concerning Parkinson's disease.

Exercise and Physical Activity

Fall Prevention

Parkinson’s Disease Medications

Motor Symptoms of Parkinson’s Disease

Non-Motor Symptoms of Parkinson’s Disease

Agent Orange and Toxic Exposures and Parkinson’s Disease


Suggested Education Essentials:

Suggested Education Essentials for Veterans with Parkinson’s Disease is a document that has been reviewed by the PADRECC Education Committee and includes useful articles such as: Overview of PD, Exercise, Medications, Nutrition, and Organizations.

 

Hospitalization Plan for PD

PADRECC Hospital Kit materials - use these specially designed tools & ask your local PADRECC for more information. Hospital Kit Checklist & Emergency Plan (a list of what should go in your hospital kit); Quick Fact Sheet for Providers about PD (to educate staff who care for you during a hospital stay); Reminder cards (post on the communication board in your hospital room or give to nursing staff to remind them you need your PD meds on time, every time). Wallet Cards and Medication Lists can be printed from  MyHealtheVet. Medical Alert ID Bracelets can be obtained by consult to VAMC Prosthetics department. 

Critical Information for Caring for the Parkinson's Patient developed by Parkinson's Resources of Oregon & OHSU's Parkinson Center of Oregon. Individualized information to share with inpatient medical staff in case of hospitalization.

Additional Articles:

Notice: When you click on a links provided below, you will be leaving the Department of Veterans Affairs Website. The VA does not endorse and is not responsible for the content of any of the links listed below. Please refer to the VA's official disclaimer at: http://www.va.gov/disclaim.htm

Aware in Care Kit from the Parkinson's Foundation aims to help people with Parkinson's get the best care possible during a hospital stay.

Frontline Episode:

Watch "My Father, My Brother, and Me", The Public Broadcasting Service's Frontline episode about Parkinson's Disease.

VA Resources

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I'm Caring for a Veteran with Parkinson's Disease (PD) -  What do I need to know? Download fact sheet

The VA has a National Caregiver Support Line. The National Caregiver Support Line Toll-Free number is 1-855-260-3274.

Visit the VA's Caregiver support site at www.caregiver.va.gov



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National Resource Directory:

The National Resource Directory is designed to connect wounded warriors, service members, veterans and their families with those who support them.